Chosen Charity 2026

Marley is the carrier of a rare genetic condition called STXBP1.

This condition impacts Marley’s physical and mental abilities, rendering him dependant on daily care.

Marley has multiple weekly meeting with specialists such as a psychomotor therapist, different physios, and a speech therapist.

Marley’s parent’s objective is to give him the best quality of life possible. There are certain things that can help. An adaptable wheelchair, a bath seat that holds his weight, a comfort chair personalised to his body shape.

Marley has an older sister called Victoria who is full of life and is in great health.